We, the John Grube Foundation e.V. aim to improve access to information and communication for people affected by the disease Granulomatosis with Polyangiitis - also known as Morbus Wegener.

We also promote research and other scientific projects that aim to vanquish GPA.

To learn more about the disease Granulomatosis with Polyangiitis / Morbus Wegener please visit the website we created, GPA-Info.org.

It explains the disease in an understandable manner and gives an experience report of a young patient who has now lived with the disease for years.

It also keeps you posted to the newest advances in research.

Chip in with your donation

John Grube Foundation e.V.

DE37 2005 0550 1043 2371 79

HASPDEHHXXX

Hamburger Sparkasse 


The John Grube Foundation e.V. was founded in August 2017. The reason for it was the sudden death of our beloved son and friend John Grube. He died of the implications of an extraordinarily strong push of the disease  Granulomatosis with Polyangiits. But just because John has lost his fight, we do not want to give up fighting and therefore continue to campaign against this disease. That is why we founded this foundation – John surely would have liked that thought and we are certain, that he would have done the same for us. 

How the money is used

We want to show you the utmost transparency in our work for the foundation, especially with money issues: Anybody should know, at any time, how the money is used, that you donated. That is why we list all the projects that we have already accomplished, that we are working on right now, or that we plan to pursue in the near future. 

Our most important goal was to improve the information that patients can find online. We want to provide reliable information for all the people affected by GPA, which is scientifically correct but understandable for non-doctors.

 

Therefore we created a website which comprehended the most important facts and explains the medical context, all written by physicians.
It will also inform visitors about current research projects and give real life examples of patients and how they live with the disease.

 

We accomplished that goal in February 2019: GPA-Info.org  

 

We also promote research and are looking for projects in this field to support.

Statute

Download
Statute of the John Grube Foundation
Satzung JGF 25.3.2018 2.docx
Microsoft Word Dokument 20.4 KB

Kontakt

John Grube Foundation e.V.

Ohnhorststraße 31

22609 Hamburg 

 

info@johngrube-foundation.com

+49 170/9656396

Über uns

Die John Grube Foundation e.V.  ist ein Förderverein, der es sich zum Ziel gesetzt hat, die Kommunikation und Information für Betroffene der Krankheit Morbus Wegener (GPA) zu verbessern.

Außerdem fördert der Verein Wissenschaft und Forschung

 

Er ist ein eingetragener Verein (e.V.) und somit als gemeinnützige Organisation staatlich anerkannt. 

Damit sind alle Spenden steuerlich absetzbar.

Spenden

John Grube Foundation e.V.

DE37 2005 0550 1043 2371 79

Hamburger Sparkasse